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by laudablepuss 01/12/2011, 7:38pm PST |
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Just Another Mysterious Stranger wrote:
I had CMV from the transplanted organ. Take it seriously; you can go blind. Fortunately, CMV usually hits early on post-transplant while you're still under a lot of supervision, plus you're taking your temp all the time at home, coming in and getting bloods done several times a week etc.
Unless you're SO SPECIAL that you don't have to do any of those things.
(...are you?)
Fuck no, it's like I have 6 mothers right now. They made me come in for ultrasounds on Christmas Eve and Christmas morning. Blood draws are now only three times a week, and I see two or three doctors every single week during clinic hours. But, as my surgeon told me last week, nobody cares about this stuff more than I care, so I'm keeping track of the numbers myself as well. It's my new hobby, that and knowing everything about my medications that I can.*
Nobody said anything about CMV making me blind though. I have another clinic appointment tomorrow, I will ask about that! O_O
*The Walgreen's pharmacists like to freak out about my meds. I guess the don't have many customers coming in asking for the nuclear weapons. "Are you monitoring the levels of this?? You'll fucking die otherwise" (He didn't say that last part.) Yes, blood draws every day (at the time). "Do you know that this second medication affects the levels of this third medication?" Yes. It's fine, my levels of that med are where they're supposed to be. I think they get red flags on their computer, because they didn't know that the third medication CAUSES the first one to be needed. But I guess I appreciate them being concerned. |
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Okay, here's my liver transplant update forum by laudablepuss 01/07/2011, 8:07pm PST 
I'm glad you're not dead since you're one of the nicest posters here, but by WITTGENSTEIN 01/07/2011, 9:06pm PST 
I will post pictures of me at a slightly higher ebb NT by laudablepuss 01/07/2011, 11:18pm PST 
Re: I will post pictures of me at a slightly higher ebb by laudablepuss 01/10/2012, 4:42pm PST 
awwwww sort of cute in a dirtbag/transplanted liver way! by ndd 01/10/2012, 6:05pm PST 
Hey, odd coincidence by laudablepuss 01/10/2012, 6:14pm PST 
Slim, no goatee: expectations exceeded NT by Vested Id 01/07/2011, 11:21pm PST 
seconded NT by up with pod people 01/08/2011, 4:12pm PST 
You're uglier than I am, I feel pretty good right now. by Just Another Mysterious Stranger 01/08/2011, 8:10am PST 
Re: You're uglier than I am, I feel pretty good right now. by laudablepuss 01/09/2011, 1:03am PST 
I feel like I should apologize by Fullofkittens 01/08/2011, 6:03am PST 
Full of Kitten Livers. NT by Mischief Maker 01/08/2011, 3:34pm PST 
Did you stab a voodoo doll of me or something? NT by laudablepuss 01/13/2011, 11:12pm PST 
there's this ongoing joke on Caltrops where people get us mixed up and can't tel NT by Fullofkittens 01/14/2011, 6:19am PST 
there's this ongoing joke on Caltrops where people get us mixed up and can't tel by Kenji Carter 01/14/2011, 7:39am PST 
That's funny, I thought bM was just making that up NT by laudablepuss 01/14/2011, 3:52pm PST 
Your liver is constantly working out. His liver was lazy. NT by Use it or lose it. 01/14/2011, 1:55am PST 
Gym, tan, laundry by Fullofkittens 01/14/2011, 6:17am PST 
Who'd have thought laudablepuss would have a 10 in END? by Entropy Stew 01/08/2011, 10:51am PST 
Re: Who'd have thought laudablepuss would have a 10 in END? by laudablepuss 01/09/2011, 1:30am PST 
What? NT by laudablepuss liver 01/08/2011, 11:50am PST 
Re: Okay, here's my liver transplant update forum by Ice Cream Jonsey 01/08/2011, 5:28pm PST 
AWWW NT by ICJ YOU ARE THE CUTEST!!! 01/08/2011, 9:08pm PST 
No, I totally agree that losing to the Seahawks is a fucking disaster by laudablepuss 01/09/2011, 12:49am PST 
That reminds me by laudablepuss 01/09/2011, 1:18am PST 
Re: That reminds me by Ice Cream Jonsey 01/13/2011, 6:50pm PST 
Front page plz NT by Vested Id 01/11/2011, 11:06pm PST 
Yaaa NT by aaay 01/13/2011, 12:02am PST 
The blurb is great. NT by motherfuckerfoodeater 01/14/2011, 3:39pm PST 
Did they ever tell you why your liver suddenly decided to die? NT by WITTGENSTEIN 01/12/2011, 4:23pm PST 
Nope :( by laudablepuss 01/12/2011, 5:09pm PST 
Re: Nope :( by Just Another Mysterious Stranger 01/12/2011, 6:52pm PST 
Re: Nope :( by laudablepuss 01/12/2011, 7:38pm PST 
I can't believe there was another transplant guy here by and he caught CMV 01/12/2011, 8:02pm PST 
Re: I can't believe there was another transplant guy here by laudablepuss 01/13/2011, 6:21pm PST 
Re: Nope :( by Fullofkittens 01/12/2011, 8:20pm PST 
oh shit man. get well soon NT by jeep 01/14/2011, 9:13pm PST 
Update time! by Just Another Mysterious Stranger 01/21/2011, 6:23am PST 
Re: Update time! by laudablepuss 01/21/2011, 7:48pm PST 
First day back at work by laudablepuss 02/01/2011, 4:55pm PST 
Re: First day back at work by Just Another Mysterious Stranger 02/01/2011, 7:20pm PST 
Re: First day back at work by Just Another Mysterious Stranger 02/01/2011, 7:23pm PST 
No worries! by laudablepuss 02/02/2011, 12:57pm PST 
Dear online liver diary by laudablepuss 02/04/2011, 10:18am PST 
Let's have Fussbett continue to needle the man, or we'll all think less of him. NT by Quentinbec 02/04/2011, 12:48pm PST 
Re: Dear online liver diary by Just Another Mysterious Stranger 02/05/2011, 7:42am PST 
Re: Dear online liver diary by laudablepuss 02/06/2011, 12:19pm PST 
Re: Dear online liver diary by laudablepuss 04/14/2011, 9:58pm PDT 
whoa, free creatine? Dude, hit the gym, bro NT by Bro spot me. Then I spot you. 04/15/2011, 1:28am PDT 
Not quite by laudablepuss 04/15/2011, 8:34am PDT 
Sorry, I'm tired and everything is DEAD FUCKING SERIOUS this morning :( NT by laudablepuss 04/15/2011, 8:43am PDT 
Re: Dear online liver diary by Just Another Mysterious Stranger 04/15/2011, 6:27am PDT 
Re: Dear online liver diary by laudablepuss 04/15/2011, 8:49am PDT 
Re: Dear online liver diary by Reverse-Lookup OED 02/05/2011, 8:47pm PST 
Re: Dear online liver diary by Mischief Testiclecuttlefish 02/06/2011, 4:11pm PST 
Highlights of my visit so far by laudablepuss 02/07/2011, 3:38pm PST 
Re: Highlights of my visit so far by laudablepuss 02/07/2011, 3:39pm PST 
And now a word from Ryan North by laudablepuss 02/18/2011, 2:56pm PST 
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